Thursday, 2 April 2026

#BlogLife1043 - Things undiagnosed people wish you knew..

1. I'm not faking.

2. Just because I don't fit into your neat lil diagnostic bubble, it doesn't mean I don't have it. Not all conditions have the exact same symptoms.

3. I'm not wasting a multitude of Doctor's time, trying desperately to be taken seriously.

4. I'm not crazy. The way I was belittled, talked down too and dismissed by GP's, consultants and specialists, left me a wreck. I questioned my sanity, was I making it up?

4. I'm not exaggerating, if anything I'm not telling you every lil aspect of my symptoms and how it affects me on a daily basis, physically and emotionally.

5. Just because I can do things, it doesn't mean I should.

Certain things cause pain in such a destructive manner that later on or the next day, I can barely do the basics, like moving.

6. Don't tell me or force your opinions on what I should to treat myself. I know what I'm capable of doing. I know what works and what doesn't.

7. Don't act like I have a temporary ailment like the flu. My health issues are aggressive and permanent, there is no cure and it will get worse.

8. Don't try to cheer me up or say Look on the bright side. Being sick is hard. It takes a toll. 

Sometimes I want to fall apart and mourn for my future. Let me be, however you want to cope, works for you. Mine is up and down.

9. Don't call me lazy for wanting to rest and take it easy. My whole body feels like it is permanently straining itself just doing the basics. 

10. Stress makes my pain and symptoms worse, so stop mistreating me and causing me grief! I can do without your power trips!!

If I don't want to do anything or sleep late or just be self indulgent, leave me to it. My body needs it.

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I guess the thing about being ill, you get around to the things you've put off doing.

I found out how to cancel the club membership for Fantastic Services, the pathetic scam artists that billed me and never cleaned my place.

I sent them a scathing email and cancellation request. Hopefully no more stalling and they will terminate it.

I would have liked a refund but it's unlikely. That is done at least. Although I haven't heard back from the nitwits.

Ugh why won't the crampages stop!! I have to do an Iceland order for tomorrow or Saturday but I just want to rest.

At 6pm the pain has stopped for now. I've been playing binaurals all day and have been so uncomfortable and tender.

I didn't know if I was going to write or not. I've finished the Iceland order for tomorrow because there's nothing really indoors and before I would have got a takeaway but now I feel like the money is nearly gone so I'm trying to stick to the essentials.

Having pmt, my appetite is just huge but I had the last of the bland wings and I'm sipping ice water.

I don't really need anything else.