Thursday, 19 March 2026

#BlogLife1036 - Things you wish weren't said or assumed about your health conditions (seen or invisible)

1. For some of us, we can't just pop a painkiller and have the pain, symptoms or discomfort magically washed away, those don't work for me.

That's why I personally choose natural remedies, like heat and rest and binaural beats.

2. Why don't you take my word for it, that I can't manage that action because it aggravates my body or mind and leaves me broken in pieces for a long time..

You make me do something and after that I can barely function, then your response... Oh sorry, I assumed you were exaggerating because you don't look sick to me..

3. Oh just smile and carry on, there's nothing you can do about it, so might as well be happy..

Nope sometimes I want to wallow and be miserable that is all too much, accept my mood, yours can be whatever you want!

4. Why don't you join us?

Because it's a long taxing journey or activity and I cannot manage it. I'm not being difficult or dramatic. I have to think carefully if there are places to sit and rest, how long it takes, will I be standing or walking for a long time, you may not have consider these things but I do!

5. Stop judging a book by it's cover

Yes I may look younger, I may look healthy, I may walk un-aided, that still doesn't mean you get to judge or assume I am not struggling inside or desperately grabbing onto walls or trying to give myself the mental fortitude to take another step instead of collapsing or resting because this time I don't think I can make it home..

6. Illnesses vary from one person to the next, yours could be textbook, mine are not. Just because something works for you, doesn't mean it will for me.

Stop assuming you know my body, my health better than I do. You've read something? Good for you, I know what works and what doesn't!

7. When I say, I can't manage much. It's extremely taxing to go to more than one place/do more than one activity, let alone several.. Don't scoff and laugh, like I'm being a Princess. I physically cannot manage it, it's not an exaggeration.

8. Stop being lazy!

This one makes me scream. Taking care of myself, limiting my movements, napping or getting a lot of rest, helps my body repair itself. I'm not doing nothing, I'm preventing a potential strain or injury that has become all too frequent for me.

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Well the above is something that came to me so I thought I would just add it to 7 Cups, for others that could be feeling the same, maybe a bit ranty, that is my style, but it felt good to say it.

Well I'm glad the UC stuff is done for the week, the next appointment is Monday and it always makes me roll my eyes when they recommend a service which is the crappiest thing ever..

Dodos! Do some research and make sure it helps people first numbnuts!

At least I feel a lil better, my eyes were closing from about 8pmish but I stayed up until 11/12 and had a really good sleep.

I feel a bit refreshed, the cramps are not as painful and at least I have some energy. 

Plus the twins aren't hurting, I hate how pmt makes your chest hurt, there is enough discomfort with the bloating.

I'm also not screaming/cursing every time I get up. I don't know why there was much back and leg pain but yeesh that was a horrible day.

Plus it's much colder today so I can have the blankie on high which helps me, I have no idea where I put the fan charger, eek.

I don't think it's the fast charger so I can't use my phone one. I just finished the last of the pakoras, that garlic and onion dip complimented it really well.

The Kebabish recipe is very hit and miss, sometimes bitter, sometimes underseasoned, sometimes peppery, sometimes mild ha.

But it's a nice veggie meal which is simple, no meat, no preparations, the hands get a rest.

I don't really warm them, just have it from the fridge, chilled.

I'm just waiting for the Looney Tunes event to start and doing an Iceland order for tomorrow.